Call for Submissions: Health Care Social Media Review #14

How can we use social media to better address health and digital literacy?

On Wednesday, Oct. 17, SocialButterfly will host the HealthCare Social Media Review—the peer reviewed blog carnival for everyone interested in health care social media. Given almost 90% of adults struggle with finding and using everyday health information–and since October is Health Literacy Month, this edition will focus on how we can better address health and digital literacy using social media tools.

Posts sharing insights on the role of health literacy in digital technology are encouraged. Posts that highlight current work in progress or discuss health and/or digital literacy in general are also welcomed.

As added inspiration, check out the Health Literacy Hackathon occurring October 13-14. Participants will be given one day to design a technology-driven tool to improve how people understand and use health information. Note: RTI International, my employer, is a proud sponsor of this event.

To submit your post:

Email a link to your post or posts (no more than two submissions per author) by 5pm (ET) on Oct. 16.

Format your submission email as follows:

  • Email Subject Line: HealthCare SocialMedia Review
  • Blog Title:
  • Blog URL:
  • Post Headline:
  • Permanent link to post:
  • Your Name: Name, Username, Nickname, or Pseudonym
  • Description or brief excerpt:

Learn more about the HCSM Review by visiting HealthWorks Collective or follow @healthworkscollectiv on Twitter. I look forward to your posts!

 

The Secret Isn’t in the Sauce

It’s time to take off your floaties and do more than follow your passion.  If you’re trying to figure out what career to pursue or how to make the biggest difference in this world, you’re going to be searching for a long time.

The secret is that no one area of concentration is magical, all-knowing or more important than the other. The architect can design the house, but without the brick layer–it’ll never get built. Making our world better takes a multi-disciplinary network of individuals, communities, organizations and talents. Your passion only gets us so far. So stop searching and start doing.

Before You Eat Your Breakfast

Go. Don’t put if off any longer or wait until “you have it all figured out” to cultivate your talents, expand your knowledge, build connections and move plans forward. Albert Einstein once said “success is 10% inspiration and 90% perspiration.” In other words, ideas inspire but execution leads to impact.  How are you going from dreamer to doer?

Make the Leap

Traditional models for change are not keeping pace with today’s challenges. The remedy? “Be fearless,” says the Case Foundation. To help you move from dreamer to doer to achiever, they suggest adopting a five step mantra:

  1. Make big bets and make history.
  2. Experiment early and often.
  3. Make failure matter.
  4. Reach beyond your bubble.
  5. Let urgency conquer fear.

Is there room for more bravery in your mission? Let it marinate. When you’re ready, consider making the “Be Fearless” pledge.

Once you know fearlessness, it’s easier to recognize. You may even decide to nominate a Fearless Changemaker who has touched your life in the Case Foundation’s Finding Fearless competition which offers $650k in prizes and awards. In a guest post written for Marketing for Change, I share Laura Vandekam’s research on what successful people do before breakfast. Some additional motivation may also be found in the Art of the Start by Guy Kawasaki, Making Things Happen by Scott Berkun, Rework by the founders of 37 Signals and Echoing Green’s Work on Purpose resources.

 

Mobile Smack Down: Obama’s Responsive Design vs. Romney’s Mobile Site (and More)

Image Courtesy of Smashing Magazine

While the candidates themselves call upon differing mobile strategies, it appears they aren’t the only ones to disagree. When it comes to mobile, where do you stand?

Think “Mobile First”

While many of us can agree with a “mobile first” approach (hopefully, right?), actually moving forward and implementing a particular mobile strategy is another ballgame. Note: For those still working within their organizations or with stakeholders to understand the importance of mobile, keep going. You’re not alone, and we thank you. All the people who have a phone yet not a toilet, thank you.

Not only is the “mobile first” mantra a cornerstone of the new Digital Government Strategy, but it’s also a strategic decision adopted by an increasing number of organizations. From Google to Salesforce and now Facebook, more companies are going “mobile first” when it comes to designing and developing web products, services and features.

OK – But Then What? 

Some organizations take “mobile first” a step further by deciding to go “all responsive, all the time.” Others, are mobile site ambassadors while others say “it depends” and some have yet to decide (or scarily, even discuss!).

In a wonderful display of responsive design, AIDS.gov unveiled its new website as one of the first Federal agencies to go fully responsive. Rhode Island also has a beautiful responsive design that follows suit. Responsive design even gets a nod in the Digital Government Strategy defined as a method of designing content so that it can be re-sized to fit on various screen sizes (e.g. designing a service to work well on both a laptop screen and a smartphone, without the need to design and maintain separate “standard” and “mobile” sites). So, wherein lies the rub?

Responsive Design vs. a Mobile Site

Image Courtesy of riixlike

Jacob Nielson, a long-time usability advocate, greatly recognized for his expertise in web design and development, says not so fast. In April, Nielson advised organizations to:

“Build a separate mobile-optimized site (or mobile site) if you can afford it. When people access sites using mobile devices, their measured usability is much higher for mobile sites than for full sites. A mobile app might be even better – at least for now.”

Interesting. To further complicate things, Nielson throws in the app option as well – which we could get lost in debating the benefit and value in native apps vs. Web apps. To some of you, you might be even more confused thinking you understand “mobile first” and now find yourself weeding through the various options not sure what to do.

You’re not alone. In Smashing Magazine’s breakdown on Obama’s mobile strategy versus Romney’s (which is an excellent read that compares the pros and cons in choosing responsive design compared to a separate mobile site), author Brad Frost may capture it best when he says “this stuff is genuinely hard.” It takes thinking and discussion. And not everyone agrees. In fact, one advisor says “experience first” is a better positioning of the “mobile first” mindset. My advice: Start the conversation. Learn your options. Prototype. Test. Keep talking. Start.

Are you Appy?

It’s also worth noting that while Obama solicits a responsive design approach and Romney a separate mobile site, both also have their own apps as well. The plot thickens.

In the August 27, 2012 edition of Times Magazine, the article “Elections Will Never Be the Same” discusses how the future of politics is literally, in our hands. Brilliantly highlighting various features in both Obama’s and Romney’s apps, there is much here to offer for the public health professional. Hint: It involves mobilizing online advocacy through technology, networks and people. But that’s a post for another day…

Share: Given your options, where do you stand on “mobile first” and mobile strategy?

Bonus: For those interested, this Federal Computing Week article compares Obama’s overall digital campaign strategy with that of Romney’s.

 

Shifting from Campaign to Cause

“The detached Don Drapers of the marketing world cannot simply rely on creating deep and lofty brand awareness campaigns any longer,” says cofounder and CEO of HubSpot Brian Halligan. He’s right. This mantra not only applies to Madison Avenue, but also within the ivory towers of public health creatives as well.

There’s more.

“Marketing campaigns are not about winning awards for creative, building the flashiest websites, gaming Google for higher rankings, generating mounds of media coverage, or negotiating the lowest cost per thousand (CPM) in order to interrupt the largest audience. The job of a marketing agency is to produce results that impact the bottom line.” This from Paul Roetzer of PR20/20 in his new book, The Marketing Agency Blueprint.

Can we get an amen?

Serving the Bottom Line

Though both gentlemen talk more so about agencies serving the private sector, parallels to the public sector are easily made. Instead of being satisfied with awareness measures of reach and impressions, let’s aim for game changing results and talk about how our efforts result in:

  • connections created
  • behavior changed
  • knowledge increased
  • attitude influenced
  • policy adjusted

To do so, we need to evolve the traditional mass media campaign model into one that serves the bottom line. Because even once you reach someone with your campaign, then what?

Broadcast on Blast

Building a bridge between awareness and action has been an ongoing pain point in public health and social change efforts. Using the mass media model, we’re really good at broadcasting our messages to reach people–often talking at them instead of with them. Yet even once reached, we stop the conversation.

At the CDC conference in August, some of my favorite brainiacs came together (shout out to Andre Blackman, Doug Weinbrenner, Nedra Weinreich, Jay Bernhardt and Mike Newton-Ward). We got into a conversation about “dosage.” Sure, that has to do with making an impact. But we also need to help voices be heard, information be shared and communities be built. For fellow theory-loving junkies, it’s about taking into consideration the whole social-ecological model.

Getting Our Hands Dirty

Traditional mass media models that follow TV PSAs, direct mail, radio announcements and the like allow us to safely distance ourselves from the nitty-gritty hard work of transforming our world. It puts us a hands distance from actually interacting with and serving our people. It’s time to roll up our sleeves.

Our work is no longer about building a one-and-done campaign, but about creating shared experiences and building movements. To build bridges, we have to walk side-by-side with those we want to not only reach, but truly engage.

Shifting Evidence

When you look at data such as knowing that 80% of U.S. adults look for health information online, 50% own smartphones, 20% or more own tablet devices and 10% have already downloaded a health app, you see a shift is occurring in how people are finding, using and sharing information. This demands that we too much shift our approach.

In May, I presented to the Metropolitan Washington Public Health Association on how new patterns and trends in communication offer new opportunities in engaging people in public health efforts. This shift isn’t about technology, but about people. People, empowered by digital media, can help evolve a campaign into a cause.

The presentation below presents three examples of how social media in particular can evolve a campaign into cause. Since I presented during National Women’s Health Week, this presentation focuses more so on this particular population.

The Social Media Shift: From Campaign to Cause from Alex Bornkessel

During the presentation, I shared additional data points on how positioning a public health effort as a cause when working with women can be especially effective. If you’re interested in this additional information, send an email to abornkessel@fly4change.com.

 

Facebook Face Off: Military vs. Health

Source: DK Web Consulting

Twice as many fans engage on Military Facebook pages than pages from the U.S. Department of Health and Human Services (HHS) according to new reports from DK Web Consulting. Surprised? Let’s explore.

Key Findings

To benchmark government Facebook use, DK Web Consulting looked at 16 Military and 66 HHS agency Facebook pages to provide insight on how social media efforts compare across government.

Military Agencies:

  • Military pages average between 3 to 4 posts per day (3.9), roughly 19 posts per week including weekends when 92.9% of pages posted content.
  • The most commonly used content among all military agencies is photos. The U.S. Air Force often posts photos and asks fans to caption the image, a strategy that has proved successful. A recent photo-caption post generated as much as 120 shares, 1,480 “likes” and 2,602 comments.
  • Nearly 4% of fans are “Talking About” each military page, the highest rate among all government segments, and twice as high as the average for HHS pages.

Health Agencies:

  • Content creation varies as 16 of the 66 pages (24%) did not have a single post during the 7 day evaluation time frame.  Of the other 50 pages that did post during that 7 day period, the quantity ranged between 1 and 15 posts per week, with 0.7 posts per day being the average. The percentage of posts-per-day drops significantly on the weekends, as only 6% of HHS pages published content on either Saturday or Sunday.
  • 26 of the 66 (39%) HHS agencies don’t allow fans to post on their Facebook walls.
  • The average HHS page post receives 24 engagements (likes, comments, or shares).
  • The average number of custom tabs used among all 66 pages was 3.4, ranging from 0 to 11. The most commonly used Facebook tab was one for videos.

What This Means for You

Automated vs. Manual Updates

In both the military and the health pages, the third-party tool most used to manage the page was Hootsuite. Military pages were also more likely to use a third-party tool than health pages and military pages tend to have more fans and overall engagement. Coincidence? Maybe/Maybe not.

Before you register for Hootsuite know this: Hubspot and others have found that the use of third-party tools can actually make your posts have a lower Edgerank in Facebook, meaning less people see them. Pages using Hootsuite probably showed stronger in the benchmarking study due to having a savvier, more informed and collaborative team working on the effort–not necessarily due to the use of Hootsuite itself. Success is due to thinking beyond the tool.

Talking About This vs. Engagement Per Post

The study found that military pages had twice the number of people engaged in their overall page. However, it also found that health pages had more engagement per post. So which metric do you measure? Both (if resources allow since one is automatically reported by Facebook and the other collected manually).

What matters–is that you algin both metrics to the right goals and objectives. For example, with healthfinder.gov’s Facebook page, we looked at “talking about this” as an overall engagement metric. For us, we tended to have 7% of fans talking about the page which is five percentage points higher than the average HHS Facebook page (1.9%) which extended the exposure and influence of our messages. We also looked at engagement per post because sometimes it correlated directly to participation in healthfinder.gov’s weekly health challenge. The challenge with its individual posts helped us gauge attitudes, knowledge and intentions around certain preventive health behaviors. Engagement per post would also matter if you posed a poll and wanted to gauge responses, asked fans a particular question, used promoted posts or want to illicit a specific action. As your college professor would say, “it depends.”

During the Week vs. Weekend Posts

The Military pages had more engagement overall and more of their pages posted on the weekends. While bitly advises not to post on Facebook during the weekend, there could be a correlation to explore here (as peak times for posting on social media often conflict by source).

Resources

Newly Released: A Health Literacy Manifesto

Good news! The Center for Disease Control’s blog, Bridging the Health Literacy Gap–is back!

The 10 Attributes of a Health Literacy Health Care Organization

In its come-back post, Dr. Cynthia Bauer highlights a recent contribution to the health literacy field, a publication issued by the Institutes of Medicine titled “Ten Attributes of Health Literate Health Care Organizations.” In some ways, it’s a health literacy manifesto for organizations. As Dr. Baur shares, this discussion paper provides steps health care organizations can take to make it easier for people to use the health care system.  It states that:

a health literacy health care organization:

  1. Has leadership that makes health literacy integral to its mission, structure, and operations.
  2. Integrates health literacy into planning, evaluation measures, patient safety, and quality improvement.
  3. Prepares the workforce to be health literate and monitors progress.
  4. Includes populations served in the design, implementation, and evaluation of health information and services.
  5. Meets the needs of populations with a range of health literacy skills while avoiding stigmatization.
  6. Uses health literacy strategies in interpersonal communications and confirms understanding at all points of contact.
  7. Provides easy access to health information and services and navigation assistance.
  8. Designs and distributes print, audiovisual, and social media content that is easy to understand and act on.
  9. Addresses health literacy in high-risk situations, including care transitions and communications about medicines.
  10. Communicates clearly what health plans cover and what individuals will have to pay for services.
Turning Health Literacy Attributes into Best Practices

Prior to the recent health care decision, Kaiser’s Health Tracking Poll reported:

  • Six of every 10 Americans said they didn’t know enough about the basics of health reform to judge its potential impact on their lives.
  • Four in 10 weren’t sure whether it’s still the law of the land or they thought it’s already been overturned.
  • Roughly 60 percent seem fine with the confusion — they say they’re either not closely following news of the looming health reform case or they’ve tuned it out altogether
Given that 9 out of 10 Americans experience limited health literacy, confusion around health reform shouldn’t be too much of a surprise. Thus, we’d hope health care organizations would quickly adopt these attributes, making them best practices. However, imagine this: What if every organization adopted these attributes?

Any organization with employees and a staff has an opportunity to be a leader in transforming the conversations around our health. From explaining health insurance to implementing health promotion and corporate wellness programs, progress is possible.

Online and Mobile: The Potential of Personalized Health Information

Personalized Health

An average 24 year old will spend more time on Facebook than they will with their doctor in 20 years, according to Razorfish Health. Given this type of reality, how do you unlock the potential prowess of personalized health in online and mobile health strategies? That is the question.

Personalized Medicine vs. Personalized Health 

We are in an age of personalized medicine. Personalized medicine refers to therapies that can be tailored to an individuals own genetics and physiology. Some relate this to genomics as a way to bridge the gap between the Human Genome Project to individualized healthcare.  According to a report from the Kaufman Foundation, “personalized medicine” is a part of a broader field called personalized health.

Personalized health “includes predictive tests and technologies for individuals and for society, and science-based strategies to prevent or mitigate disease and poor health.” We don’t have to look too far to see personalized health at work, especially given the ongoing evolution in mobile technologies, digital strategies, online communities and health IT.

4 Additional Ps

In social marketing, we talk about 4 P’s (Price, Product, Place and Promotion) and sometimes 8 P’s (adding in Policy, Publics, Partnerships, and Purse Strings). Personalized health involves four Ps of its own as part of P4 Medicine:

  1. Predictive Medicine denotes the creation of therapeutics that will prevent a disease that a person is assessed to have a high probability of developing.
  2. Preventive Medicine refers to the development of a probabilistic health projection for a person based on his or her DNA and protein expression.
  3. Personalized Medicine refers to treating an individual based on his or her unique human genetic variation, completing the predictive and preventive efforts above.
  4. Participatory Medicine denotes patients’ active, informed involvement in their medical choices and care, acting in partnership with their health provider.
How can we best apply these concepts when developing personalized health strategies–especially for the expanding number of digital and mobile formats?

Going Online and Mobile

The Pew Internet & American Life Project recently released a new presentation titled, “Mobile is the Needle; Social is the Thread” which highlights the change in how information is integrated into our daily lives as compared to the turn of the century. One of the sound bytes that pops out the most  is that “information is now portable, participatory and personal.” Question for you: Would you describe your current online efforts, mobile initiatives or content in the same manner?

Herein Lies the Rub

Potential privacy questions aside, how can we apply personalized health online and via mobile devices–in an effective manner? Effective is the key word. Example: 80% of American Internet users have looked for health information online while 10% of American adult cell phone users have signed up for a health app–yet 26% of mobile apps are used only once.

Perhaps the answer lies somewhere in what Darcy Sawartzki describes in her latest post for Social Marketing Quarterly: People like to make stuff–vs. make stuff happen. Perhaps we should take a step back from creating more apps, more Web pages, more online communities and ask: What are the small steps we need to take first? What are the motivations behind the little behaviors that can add up to big changes?

Moving Forward

Thankfully, learning how to make small steps towards big changes is the theme of B.J. Fogg’s Mobile Health Conference this May. Fogg has been looking into the science and psychology behind habit making and how this leads to success in three areas: behavior change, collaborations, and experience design. B.J. Fogg is also known for saying: “Put hot triggers in the way of motivated people” when it comes to designing for success. This starts to make even more sense when you look at what mobile apps researchers at Johns Hopkins University have found to be effective:

  • Those that send reminders to keep patients, such as those with HIV or TB, on their drug regimens.
  • Those that send messages to help people change harmful behaviors such as smoking.
  • Those that use texts about specific goals and behaviors to aid in weight loss.

In their research, one participated said she preferred one app over another “because it was more personalized.” If your not familiar with the personalized health movement yet, it might be time to get on board. As one source says: Whether it’s  mobile or digital health–it’s all personalized [health] to us.”

*****

Additional Resources:

What’s In A Campaign? That Which We Call Change

As the science behind social change evolves, how we approach our work must too. And sometimes, it is just semantics. But sometimes, it’s not. It’s a difference in mentality.

Take the idea of a “campaign” for example. The word campaign itself brings with it assumed processes, methods and associations. It also ranks up there with “awareness” as one of the most overused and over-relied upon words in public health. We can do better.

The word-of-mouth company, Brains on Fire, wrote a brilliant manifesto on the inherent differences between a campaign and a movement that can help point us in the right direction:

Campaigns have a beginning and an end.
Movements go on as long as kindred spirits are involved.

Campaigns are part of the war vocabulary. (target, launch, dominate markets…)
Movements are part of the evangelist vocabulary. (evangelize, passion, love…)

Campaigns are dry and emotionally detached.
Movements are organic and rooted in passion.

Campaigns rely on traditional mediums.
Movements rely on word of mouth, where the people are the medium.

Campaigns are part of the creationist theory—we’re going to create something cool
and people will talk about it.
Movements are part of the evolutionist theory—whatever we co-create with the fans
they can own and run with it, which will evolve over time.

Campaigns are you talking about yourself.
Movements are others talking about you.

Campaigns are an ON/OFF switch.
Movements are a volume dial—and there’s no zero.

Campaigns add to awareness.
Movements add to credibility.

Campaigns are “you vs. us.”
Movements are “let’s do this together.”

Next week, the University of Florida’s Center for Digital Health and Wellness will host its first Digital Health Communications Extravaganza. May we approach the week with the idea that we want sustainable movements of change focused on outcomes, impact and building relationships that strengthen communities.

Will you be at #DHCX? What other words rank up there on your list of over-used and over-relied upon?

flickr credit: JanneM

Is Talking About Spirituality and Social Change Taboo?

What shapes your world view? How does your world view influence your work to change the world for the better?

Growing up, we’re told we shouldn’t talk about two things: politics and religion. Yet these two things often help set the foundation of one’s world view. How do we go about changing the world for the better if we can’t talk about either? It’s not realistic–Is it?

httpv://youtu.be/QXfD5SJgPqo

“If I hear one more politician croak out the words that his or her faith is a private matter, I may just have to go smack them. That is so not reality. All of us have a worldview and that worldview shapes everything we think, act, or do.”  –Kay Warren, Saddleback Church

How does Spirituality + Social Change Add Up?

This post is prompted by two different events:

  1. Learning about the upcoming Justice Conference taking place next month, and
  2. Listening to a keynote address by Kay Warren at Pepperdine University’s 2010 conference, The Role of the Church in Doing Justice

The role of spirituality in social change has a lot to answer for–humans have a history of twisting one to achieve selfish desires and horrific acts. That said, does this mean that spirituality should not be a part of the social change dialogue? When you read social marketing texts or go to conferences, you don’t always hear a lot of chatter about mobilizing the network of the church or other faith-based organizations in efforts. Is it too taboo? How can we bring these two worlds closer together for good?

Mobilizing the Place “P”

The PEACE PlanIn 2009, President Obama created the Office of Faith-Based Organizations and Neighborhood Partnerships, but how can we challenge ourselves–as both practitioners and people with our own world views–to go a step further?

In social marketing circles, practitioners often look at the distribution network of Coca-Cola and ask how can we utilize the place “p” and mobilize it for good? Some, like ColaLife, are already a step ahead of many. In Kay Warren’s address, she discusses how the widespread distribution network that local churches offer can offer a sustainable solution to global health and international development efforts. To highlight the potential of this network, she shows how there are three rudimentary hospitals in Western Rwanda yet 726 churches.

Kay Warren goes on to present The PEACE Plan, a “hopeful response to the five giant problems in the world: spiritual emptiness, self-serving leadership, poverty, disease, and illiteracy.” Kay and her husband Rick Warren (author of a Purpose Drive Life) created The PEACE Plan with the goal to mobilize a billion ordinary church members–or half of the world’s Christian population–to do normal tasks that make a difference in the world.

Who is the Hero?

One of the key points from Kay Warren’s keynote is the value and dire need for servant leadership, people who lead by serving others. This is a mentality and perspective we can bring into every meeting, every conversation and every interaction with others. No matter where you stand on whether or not spirituality is appropriate to discuss in social marketing circles, I personally encourage you to watch the video above. You’ll see common themes between that which we work to achieve in social marketing and the spirituality expressed.

What do you think? How does the spirituality fit into social change? Or, is it too taboo to discuss?

Passion Meets Purpose – Let’s #Rock2012

How are you applying purpose to your passion? Between blogging with Razoo and working at IQ Solutions on fun projects such as launching Healthy People 2020 and our Nation’s Leading Health Indicators, it’s been awhile.  There are two announcements I want to share:

Evolving Beyond the Free Agent Fundraiser

Jo Rampy crossing the finish line at the inaugural TRI 2 Encourage with her family.

My family and I (pictured above) have launched a nonprofit foundation to help advance multiple sclerosis research called the Rampy MS Research Foundation. Our vision? Find a cure for MS within our lifetime. You may recall how my family and I have been free-agent fundraisers for the multiple sclerosis community over the past six years. From all of our efforts combined, we’ve been a part of raising half a million dollars for MS.

Wanting to place a focus on MS research specifically, we’ve made our work official by achieving 501(c)3 status. Spearheaded by my dad, we have already created a partnership with the University of Arkansas’s Medical Sciences (UAMS) Department of Neurology and Multiple Sclerosis. Together, we are hosting an MS Research Symposium on January 24 where we will be kicking off 2012’s TRIFEST for MS happening this upcoming Labor Day in Bentonville, AR. Expect more updates on this as our Foundation continues to grow.

Read Our Family’s Story  –  Follow Our Chief Encouragement Officer on Twitter

Introducing Professor Bornkessel

One of my aspirations is to always be learning. To grow, you challenge yourself by embarking on new adventures–such as teaching the first-ever “Health Promotion & Social Media” course at American University.

If you want to follow along, I’m having the students read the latest edition of Kotler and Lee’s  book, Social Marketing: Influencing Behaviors for Good and The Dragonfly Effect by Stanford Professor Jennifer Aaker.  Students will also be partaking in a number of labs and projects to not only grow their knowledge but also learn by doing. Over the semester, I will work to share insights gained from this experience and questions raised on the role of social media in health promotion and behavior change. In other words, this blogger is back!

How are you spreading your wings in 2012?