Tag Archives: multiple sclerosis

Facing Social Change at the Dinner Table

My dad, Scott Rampy, is a free agent advocate, activist, and fundraiser working to end multiple sclerosis. He’s also humble. So he doesn’t say it in his post, but in one year, with two events, no budget, and a handful of volunteers, my dad spearheaded the effort to raise over $250k for the National MS Society–and that was just in his spare time. Below, read about his latest effort in working to crush MS and where he finds his inspiration. Reading the post and typing this intro, I have tears in my eyes. Our family’s fight is real. It’s personal. And it’s persistent.

By Scott Rampy:  The word “social change” for me is intimidating.  It implies that there has to be an attempt to resolve a social injustice, shortcoming or reversal of public opinion.  For me, social change can be as simple as the inspiration that sits across from you at the dinner table.  In my case that is Jo Rampy, my wife of 26 years.  From a pure grass roots perspective, social change can be motivated by inspiration to inform others in an effort to spark a movement in a small way to solve a larger problem.

This is the case with the National MS Society.  Multiple Sclerosis (aka many scars) affects nearly 400,000 people in the country and selfishly I’m focused on the one person, Jo, who deals with it everyday.  She has been diagnosed with this disease for the past 7 years.  MS attacks the myelin that surrounds our nerve endings in the brain that control our central nervous system.  The damaged myelin forms areas of “sclerosis scars” that over time, affects ones ability to talk, see, feel, walk and concentrate.

Jo has been an athlete since the first day I met her, as she was running stadium stairs when I first noticed her.  Since the diagnosis, she has maintained an active lifestyle just trading her running shoes to walking shoes.  Jo walks 30-35 miles a week and regularly engages in health education to learn how to manage and live with MS.  As a result of her commitment, I’ve taken the challenge to SWIM, BIKE and RUN so that someday people with MS can again.

For the past several months, I have been training for my first half iron-man in Branson, MO Sept. 19. This race is not only a tribute to the endurance and strength I observe in Jo everyday but a tribute to people that deal with MS on a daily basis… so I SWIM, I BIKE and I RUN so that they can again.

There is no cure for MS, but my goal is raise money so the research can continue to find a cure in our lifetime.  My call to action is to have you join our cause and if motivated, donate $70–a dollar for each of the 70.2 miles traveled in my race.  A half iron-man consists of a 1.2-mile swim, a 56-mile bike ride and a 13.1-mile run.  At the writing of this post, we have raised $2,100 and have 106 members supporting the cause.

Please join, invite or donate and support a cause that will make a difference for someone dealing with MS.

The Changeblogger Meme Continues

After allowing some time for reflection, I want to respond to the Changeblogger Meme that the wonderful Qui Diaz began over at the Buzz Bin.

Qui, while highlighting the changeblogger movement, also created mapped out a great way to further spread the word, while also allowing us to learn more about each other and what motivates us in our work. She asks us three important questions. Thus, these questions not only continue the changeblogger mantra, but lets us know more about our community.

  • What is one change – big or small, local or global – you want to see in your lifetime?
  • I love to champion for people to own their education. It’s my number one advice to any student or colleague. Education, being defined as increasing one’s willingness to learn – about life, people, a neighbor, a stranger’s circumstance, a country’s predicament, and about oneself. From this, I feel so much else flows. =)

  • Who is already working this issue that you think others should support?
  • Many people. This being both an Olympic year and an election year, I am seeing it more sources for inspiration than ever. Journalists are working towards this goal. Teachers, communicators, athletes, social tech friends, lawyers, youth, social workers, non-profits, repairmen, grandmothers, and more. I’m just blessed to be working among these people…and learning from them along the way! =)

  • How are you going to use your Web/tech/marcom skills to further this cause? (Or, what are you already doing that work?
  • Through this blog, I hope I am inspiring others to continue learning and growing. I hope that in you, there is a root that’s taken hold that is growing infectiously within you and being spread among others, that when you believe in something, when you work hard, and settle for nothing less than your utmost best, anything truly is possible. It’s just easier when we have a community to support us, and healthy influencers amongst us. Thus, thank you.

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    Before you think I am being a cop-out from the meme. This is honestly how I feel. And, I feel the beginning for positive change around oneself, begins within oneself.

    Beyond this, I do have a personal interest in finding a cure for multiple sclerosis. Much of my volunteer efforts have gone towards this issue, as well as other health-related issues. I’m also a strong believer in mentors and role-modeling programs, individual empowerment as a route against alcohol and drug abuse. As a female and past gymnast, I am well aware issues like anorexia due to many beloved friends battles. The issue that has been increasinly on my mind most recently is access to healthy drinking water.

    However, this is why I love social marketing! It goes beyond awareness, beyond fundraising, and looks to develop long-term programs and initiatives to address these challenges. I can’t wait for the future of this field. But that’s a whole ‘nother rant. For now, join the journey. It’s going to be rad. Check it, =)

    Tagging: Kivi Leroux Miller, Mike Kujawski, Tera Wozniak, Thursday Bram, Leyla Farah, Jeff Brooks, Katya, Rosetta, Rebecca Leaman

    photo cred: flickr, carfs

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    Another Turn on the 29-Day Giving Challenge

    The 29-Day Giving Challenge movement was started by Cami, when she was faced the diagnosis of the chronic illness multiple sclerosis during a major move. A spiritual teacher of hers, Mbali Creazzo, suggested that she give away 29 things in 29 days in an effort to get outside her own struggle each day.

    According to Mbali, the 29 gifts originated as an African tradition. Today, over 2,000 people have participated in the challenge so far. And, I am joining them.

    The challenge focuses on giving, anything – from clothes, to money, to smiles, hugs, compliments, time and energy, love, compassion, empathy or an extra hand – any way to GIVE. The challenge does come with a set of rules, mainly, to have fun, relax and reflect.

    I joined this challenge for a variety of reasons.

    First, I connected to Cami’s story as my best friend has multiple sclerosis. Secondly, that same friend continues to teach me, and give to me, AND give to others on a daily basis. She is continually reading and sharing her joy for life, her keen insight into the human spirit and her enthusiasm and love for life.

    So, I’m taking the challenge, and taking it another turn: I want to concentrate my giving on those that are close to me, to show appreciation and love for what they do. Often time, I think it’s easy for us to focus on trying to help others, especially in the nonprofit and social marketing fields. Sometimes, we overlook those right in front of us in the process. (Note: It’s still important to give to others, but u pickin’ up what I’m putting down, right?) Thus, I plan on doing the 29-Day Giving Challenge:

    • With my boyfriend. My mom. My best friend. My roommate.
    • And groups of people including coworkers, friends who live far away, the homeless, nonprofits, etc.

    Imagine what we could do if we TARGETED not only our financial giving, but the gifts that take extra time, extra thought and that extra step…to say thank you, you are loved, and I care.

    I invite you to join us! The 29-Day Giving Challenge also has an online community here.

    I will share my reflections on my experience at the end of each time period.

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    If you’ve participated in the 29-Day Giving Challenge, share your experiences with us in the comments section, =).


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    If You Happen to be in the area…

    What does the headcoach of the Green Bay Packers Mike McCarthy, the Arkansas Gov. Mike Beebe, philanthropist Dick Trammel and KNWA anchor Matt Turner have in common?

    They will all be present at the NWA MS Dinner of Champions.

    Believing in transparency, I wanted to share with you a project I am involved with in the NW Arkansas area. Due to a lack of current resources, we’ve made the organization’s ‘website’ be a blog. You can find it at www.msquestforacure.wordpress.com.

    The organization is called MS QUEST FOR A CURE, developed under the National MS Society, MS QUEST is the NWA Arkansas branch. I’m not trying to promote any one cause over anything, I just add information I am knowledgeable about, have on hand and have experience with. Being so, two posts now discuss multiple sclerosis. A bigger variety of information will be included, but hey, we’re in the blog-land right? We want to talk about what we’re doing and who we are. Our experiences help make us who we are. So, I hope you enjoy the posts, =)

    Web 2.0 Wednesdays

    With the growth of Web 2.0 (and the up and coming uses of Web 3.0), I plan to showcase an organization/cause that’s using great Web 2.0 strategies to further its mission within its social marketing strategies.

    Today’s Web 2.0 Wednesday honors The National MS Society’s site centered around its latest re-branding for raising awareness and support for MS, their micro-site Join The Movement.
    Changing MS Logo

    On this site, they have ‘The Wall’ and the option to ‘Create Your Mark.’ Here, users of the site can literally draw their own statement against MS, including the cause’s new logo and rebranded mission. Then, it can be submitted to The Wall, with hundred’s of other users’ drawings. This not only reenforces the newly packaged mission, but allows for customization, interaction with the cause and shows how the disease affects others.

    Props to the MS Society! PS: They also have another cool micro-site they use to share and submit various personal stories about the effects of Multiple Sclerosis, http://www.faceofms.org/.